Support those with rare diseases

Rotary E-club Porches International has launched an appeal for support for the national association of mental and rare diseases, Raríssimas. With national headquarters in Moita, near Lisbon, Raríssimas has now opened a facility in Tavira.

Local businessman and father of a son with a rare disease (Angelman Syndrome), Ricardo Chaves directs the Tavira operations. The centre will be a multidisciplinary clinic, created in order to meet the growing demand for personalised therapies and rehabilitative and specialised consultations.

Through a multidisciplinary team, they will develop individual treatment programmes that focus on the motor development and sensory cognition of their clients and also supporting their families.

Rare diseases occur in one in every 2,000 persons, or less. While each disease is rare, there are 5,000-7,000 of them, each with its own symptoms, diagnostic requirements, support needs and rehabilitation processes.

Raríssimas was chartered in 2002 by a group of concerned parents and has become an association with high national and international recognition for its work supporting people with rare diseases and their families.

Raríssimas is committed to increasing public awareness about rare diseases, improving the diagnosis, referral and treatment of those with rare disease, and providing care to rare disease patients and their families.

A fundraising gala dinner and musical evening in aid of Raríssimas is now planned for May.

Facebook: Rotary E-Club Porches International

Facebook: Raríssimas – Delegação Algarve